World Down Syndrome Day Raises Money & Awareness

Click HERE for the Down Syndrom Association for Families in Nebraska website.

Click HERE for the World Down Syndrome Day website.

March 21st. The date may seem like another Wednesday, but to the down syndrome community, it's a special day.

Anna Barrett is a four year old who loves, "Noodles, noodles are your favorite!"

She has three sisters and parents who say she's a blessing to the family.

Tina Barrett is Anna's mother and says, "There's so many misconceptions about what it's like raising a child with down syndrome, it's so much harder, but in reality it's no different than raising any other kid, she has some things that are harder and some things that are easier."

On World Down Syndrome Day Anna and others hope you'll look past them having too much of a good thing.

Deb Safarik is President of the Down Syndrome Association for Families in Nebraska. She tells 10/11, "Down syndrome occurs because of a triplication or trisome, on the 21st chromosome. So instead of having 46 chromosomes, people with down syndrome have 47."

She adds, "We want people to understand that a person with down syndrome is a person first."

These blue bracelets say band together for down syndrome. They were specially ordered for members of the Lincoln East High School symphonic band.

Deb says, "It just seemed very appropriate, so this year we gave 120 bracelets away."

Paul Safarik's friend Max wore one of the bracelets Wednesday.

Paul says it makes him feel , "good and happy" to know his friends and classmates are supporting him.

In turn Max and his family came to Noodles & Co. Wednesday night to raise money for the Down Syndrome Association for Families of Nebraska.

Pauls Friend Max Oehlertz says, "You can look at it as a disability or not, like they were saying they all have the same goals, dreams, fears that everyone else has."

Because in the end, Deb Safarik says people with down syndrome are more similar to you and I than they are different.

The Down Syndrome Association for Families in Nebraska holds workshops and offers resources for families. Here are some of there upcoming events:

iPad/iPod 101 Workshop
Hy-Vee - 5010 O St Lincoln
Presenter: Lenette Sprunk Assistive Technology Specialist Serving Educational Service Units 5, 6 & 7 Assistive Technology Partnership What to do with that new iPad? How to best use it? Been thinking about getting an iPad or iPod , but not sure if it will help your child? Lenette Sprunk will be come to talk about iPads and what apps are best for children with Down syndrome. We will also have some iPads and iPods to test out. What case is the best for your iPad? We will have some different case on hand to check out. Lenette will presenting for 45 minutes then just answering question until 12:30. If you have any question to ask Lenette email Caroline at cmfehlhafer2001@gmail.com. Please RSVP to cmfehlhafer2001@gmail.com
March 31, 2012 at 10:00 AM - 11:45 AM

New Parent Meeting
Hy-Vee club room on North 84th and Holdrege
DSAF will be sponsoring a New Parent Meeting to all parents who have a child with Down syndrome from birth to age 3. The meeting will be located at the Hy-Vee club room on North 84th and Holdrege. As new parents you may have many questions, concerns, or information you want to learn more about to help your child. We will have some wonderful professionals with a lot of expertise who will give you suggestions on ways you can help your child as well as answer any questions you may have. We have an Occupational Therapist, Physical Therapist, Pediatrician, and Speech Pathologist who will be there to share some of their knowledge, tips and resources. This is a wonderful opportunity to have this many professionals at one time to share important and helpful advice. This will also be a time to meet new parents and visit with one another. (There will be no daycare available.) To RSVP/questions, please contact Liz Echternkamp (402)-499-6842 or eldrenliz@gmail.com
April 28, 2012 at 10:00 AM


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