Local Girl Battling Rare Disorder

By: Bonney Bowman Email
By: Bonney Bowman Email

"She's always making everybody smile, she's always dancing and being silly and she's just a happy kid that wants to enjoy life." - Jennifer Meints

A Lincoln girl is battling a rare condition only 350 kids in the world are diagnosed with.

Grace Meints has PHACE.

It's a spectrum disorder which effects her brain, heart, eyes and arteries.

Her health had been good, but recently she took a turn for the worse.

Monday morning, Grace and her mom will fly to Cincinnati to see a specialist.

It's something they've done many times before, flying all over the country, but mom Jennifer says nothing phases her daughter.

Jennifer says, "She's always making everybody smile, she's always dancing and being silly and she's just a happy kid that wants to enjoy life."

Traveling often for treatment is expensive.

Friends of the Meints family are throwing a benefit fundraiser for Grace.

The event will be Saturday, November 10th at Capitol City Christian Church from noon until 3:00 p.m.

It features lunch, provided by the Olive Garden, and a silent auction.

Tickets are $5, or $25 per family.

Anyone can make donations at Spirit of America Federal Credit Union in the care of Grace Meints.

The credit union is located at 325 N. 52nd in Lincoln.


Comments are posted from viewers like you and do not always reflect the views of this station.
powered by Disqus
KOLN-TV Call: (402) 467-4321 Toll-free: 1-800-475-1011 840 North 40th Lincoln, NE 68503 Email: info@1011now.com KGIN-TV Call: (308) 382-6100 123 N Locust Street Grand Island, NE 68802 Email: kgin@1011now.com KSNB-TV Toll free 888-475-1011 123 N. Locust St. Grand Island, NE 68802 Email : ksnb@1011now.com
Gray Television, Inc. - Copyright © 2002-2014 - Designed by Gray Digital Media - Powered by Clickability 175152991 - 1011now.com/a?a=175152991